Parkinson’s UK (Cardiff and Vale Services)

The Parkinson’s Local Adviser service (Delyth Pritchard) can be accessed via the Parkinson’s UK Helpline*
*Parkinson’s UK Helpline

Telephone: 0808 800 0303 or Email: [email protected] (emails answered within 5 working days)

Website: www.parkinsons.org.uk

Parkinson’s Nurse Specialists in Cardiff and Vale
Contact: Tracy Williams or Sandra Mahon
Telephone: 029 21824342

Our aim is to find a cure and improve life for everybody affected by Parkinson’s, which is a complex, progressive, neurodegenerative condition that has a significant impact on all aspects of life for the person affected and their family. We do this through:

• Providing expert information on Parkinson’s via our helpline, website, printed materials and local advisers.
• Funding ground breaking research into the condition – the causes, symptoms, effective treatments and ultimately a cure.
• Offering local friendship and support to those living with the condition, their families and carers via a network of volunteer-led groups.
• Campaigning for fair treatment and uniform access to high quality services regardless of where people live and improving decision makers and the general public’s understanding of the condition which affects over 8,500 people in Wales (a number which is only set to grow as we develop an increasingly elderly population).

There are a number of groups in the Cardiff and Vale area (as listed below), but due to current covid restrictions only one (Cardiff Branch) is meeting via Zoom. There are plans to resume face to face actvities as covid restriction are lifted. For more information please contact Rebecca Lydon, Volunteer co-ordinator, Email: [email protected] Tel: 0344 225 3714

Branch Support Groups:-

Cardiff Branch: Bethel United Reformed Church, Community Hall, Llangranog Road, Llanishen, 2nd Tuesday of the month at 11am.
Vale of Glamorgan Support Group: Resource Centre, Murchfield Hall, Sunnycroft Lane, Dinas Powys. 1st Tuesday of the month at 2pm

Parkinson’s Cafés :
Cardiff: – Whitchurch Community Centre, Old Church Road, Whitchurch, CF14 1AD – 1st Tuesday of the month 11.00-12.45

Rhydypenau Library, Llandennis Rd, Cyncoed CF23 6EG – 3rd Monday of the month 10.30-12.30

St Mellons Community Hub, Crickhowell Rd, Cardiff CF3 OEF – 3rd Tuesday of the month 10.30-12.30

 Ely & Caerau Community Hub, Cowbridge Road, West, Cardiff CF5 5BQ – 1st Wednesday of the month 10.30.-12.30

Llantwit Major Parkinson’s Cafe, Llantonian Community Hall, off Boverton Road, Llantwit Major CF61 1TF. 3rd Wednesday of the month 1.30 to 3.30pm

Live Loud!

Live Loud! is a free, fun and sociable Parkinson’s UK group that meets every fortnight via Zoom. We have five groups which are run by trained volunteers.

It is estimated that about 80% of people who have Parkinson’s have voice or communication difficulties. As with other symptoms of Parkinson’s the “use it or lose it” maxim holds true and Live Loud! aims to offer people with Parkinson’s activities that provide opportunities to use their voices.

The groups are welcoming and supportive and where the aim is to be heard, so volunteers and other group members encourage each other to speak loudly and clearly.

We discuss social strategies to help with voice problems and try to have fun alongside the work.

We have a set of Ground Rules that we ask people to observe so that everyone gets a fair opportunity to use their voice during sessions.

Live Loud! on Zoom

We are beginning a new series of All Wales Live Loud! sessions in September. Live Loud! is a volunteer-led voice support programme designed to improve your vocal confidence. It’s free and open to anyone with Parkinson’s living in Wales.

Registration is now open. You will need a laptop, smartphone or tablet and internet connection to access the sessions. We can help you if you haven’t used Zoom before. 

We also run Zoom groups for people living in Cardiff, Monmouthshire and Newport as well as a drop-in group for people who have previously attended Live Loud! and live anywhere in Wales. For more information please contact:

 Karin Chandler Email: [email protected] Tel: 07966 827887